Wednesday, November 19, 2008

A Long Day

We are finally home from the clinic. Today was a very busy day with tons of patients trying to get their appointments finished before the holiday. Because of the large number of patients, the wait for each step of our day was a little longer than normal (not the best day to be without food, since Joshua couldn't eat before his spinal tap). That being said, Joshua, as usual, handled the day like the champ that he is. 
He waited in the clinic waiting room patiently. 
He waited in the line to have his port accessed patiently. 
He waited for Dr. Zieber to be available to see him patiently. 
He waited for a chair on the chemo floor patiently (since they were all full). 
He waited for his IVIG to finish patiently. 
He waited for his Vincristin to be pushed through his port patiently.
He waited in the surgery waiting room patiently.
He waited while they gave him two breathing treatments before sedation patiently.
He waited for the sedation team to come to the surgery floor patiently.
He waited for his Icee to come after he woke up from the spinal tap patiently. (not the toughest wait of the day)
He waited for our car to come pick us up. (yes I use valet on sedation days and I'm not ashamed of that)
Ironically, when I left to pick up Joshua's medicine at the pharmacy and they didn't have it ready. I quickly gave a big sigh and asked how long I would have to wait. Maybe I should take a cue from my boy!
My friend, Rebecca, refers to this portion of our 12 week cycles as the "dark days." I want so much not to feel that way and I pray each time that my emotions will not be landblasted. Unfortunately, I am always met the harshness of this experience. Today, however, I am graciously reminded that the Lord is my LIGHT and my salvation and that He, above all else, is the stronghold of my life. (Psalm 27:1-2) Today, I will do my very best to rest in that.

6 comments:

amy wright said...

It just shouldn't have to be this way for a boy who is already having to be tough. But I guess that's life.
I think that I'll copy this blog and read it on days that I have to wait. My waits don't seem to compare.
I'm praying for you guys when you come to my mind.

Patient and Persistent said...

Jana, it was so good seeing you and Joshua today. One of the first "good" words of advice someone gave me when our new journey started was to "make sure you remember to breathe." Jana, make sure you remember to breathe! Hey, don't laugh, it has helped me MANY times! LOL

Anyway, keep your faith, and keep it strongly in front of you (not quietly behind you.) Faith does so much more for us if we are following it instead of letting it push us! Our news today was just a small "molecule" (as Jaxen would say) of how great God can be!

Anonymous said...

Oh, what a day. I'm sorry it was so long. I pray that you are resting tonight. You, my friend, are doing the ultra-marathon. How I wish we could somehow carry the load. Just know that we are praying...

Erin said...

good news! I am still here and would love to sneak in a hang out with you?! i don't know if it's even possible. but i'm gonna call you!

Becky Dietz said...

I'm praying God renews your strength and meets all your needs. You're doing great!

Amanda Conley said...

Wow..that sounds tough. It's amazing to me how God provides, it's neat to see how Joshua is learning of God's amazing grace at such a young age. I'm praying for you guys!
Did you make it to class on Friday? Sorry I wasn't there. Everyone is sick in my family, except me...
Kaleb had to get blood drawn 'cause they didn't know why he is so sick, but now they think everyone has mono. (which explains why I'm well, 'cause I already had it.) We'll get the test in on Monday (I hope.)
I hope you have a good Thanksgiving!!