Friday, October 31, 2008
Halloween 2008
Matthew
Thursday, October 30, 2008
Now We're Cookin'
Monday, October 27, 2008
The Good News
Low Counts
Sunday, October 26, 2008
Coming Home. Staying Home.
Saturday, October 25, 2008
Inpatient
It's Been a Good Run...
Sunday, October 19, 2008
Two Years Later...
October 18 marked the 2 year anniversary of Joshua's diagnosis with leukemia. He continues to do well, after a 2 year cycle of oral chemo everyday, intravenous chemo every 4 weeks, and a spinal tap every 12. There's only about 15 more of those 4 week cycles to go, as we will end treatment, God willing, before Christmas of next year.
Last year at this time, Jana and I posted some of the reflections we had over the first year. You can read that post if you're interested by clicking here and scrolling down a little bit to the entry from October 18.
To continue the tradition, here are some more reflections that have come as we finish this leg of the journey. If you've been reading the blog a while, some of these might sound familiar, but here goes:
1. God draws straight lines with crooked sticks. I once heard Harry Reeder say this, and it's proven to be true. I think it expresses the confidence that God has a clear purpose and direction in mind though the pathway is crooked. It's difficult. Faith is trusting in the one holding the stick, not in the apparent circumstances of the drawing.
2. Real community bears each other's burdens. As heavy as leukemia is, we look around us and see the shoulders of our friends and family drooping under its weight as well. They don't turn it on and off either; the carry it with us.
3. There's nothing like a plastic sword to help out a kid. Joshua and I bought a sword for 50 cents at a garage sale, and many a tough day has been made better by fighting off imaginary dragons in our living room.
4. Everybody medicates their pain somehow; some forms of medication are just more obvious. There's alcohol, drugs, and other substances we use to try and take us away from reality, but then there's also movies, music, and, yes, even church. These are all things we can lose ourselves in, all as a part of an effort to not face up to the reality of our circumstances.
5. I think people during moments of crisis come to church, but I don't think they come there looking for answers necessarily. Maybe this is where we go wrong sometimes. Instead, I think they come looking for an acknowledgment of struggle, that life is difficult and not quite as cut and dry as we might think.
6. In some ways, I think waiting rooms are the closest representations to heaven there is, simply because there are no petty divisions in waiting rooms. There's no black or white, rich or poor. There is only a group of people with a common linking that bonds them together. Such is the case with heaven. People aren't divided along racial or economic lines; they instead are bound together by one common thing—a pair of wooden beams nailed together.
7. Control is a myth. We strive and strive for it, but the reality is we are one moment away from life turning upside down. Insurance, 401K's, burglar alarms, seat belts - they're all fine things, so long as we don't fool ourselves into thinking we are really controlling anything.
8. There are alot of unsung heroes at the hospital, people like the care partners who take temperatures and change diapers with such skill that they don't even wake you up at night. Or the nurses who are willing to play in a pick up baseball game in the hallway. Those folks are rarely recognized but are vital for putting one foot in front of the other in this journey.
9. Those who walk deeply with the Lord are also those who have wrestled with Him. Indeed, I think a big part of our spiritual development and growth is our ability to process and embrace the pain that all of us have in our lives.
10. That being the case, most of us never do. We never think too much about it because it hurts, and so we find ourselves outwardly moving forward but inwardly stalled in the middle of our pain, resentment, and bitterness.
11. It's okay to acknowledge the difficulties we have with God; it's not okay to live there. At some point you've got to move forward in faith. That's what the psalmist did; so many of the psalms have a section of complaint against the Lord, but they don't end like that. They end with the psalmist making the choice to believe and to have hope. And it is a choice.
12. Is there a greater blessing from the Lord than kids? Don't think so - at least not today.
13. God is more interested in who we are than what we do. I have alot of questions about the future. Where will we go? What will I do? I know those questions are important, and I know God cares about answering them. But I think He cares more what's going on inside of me, knowing that the work in me will lead to work through me.
14. God is mysterious. That's all I have to say about that.
15. Faith is work. Some have argued throughout history that Christianity is a crutch for the weak-minded, for those who cannot accept that the universe hands out disease and blessing completely at random. I disagree. In the last 2 years if would have been much easier many days to stop believing. It's harder to believe, because believing means wrestling with the truths of God.
16. Finally this - I am convinced that the Lord loves us deeply. He's not mad at us. And He wants to walk with us intimately. That's good news.
Saturday, October 18, 2008
2 Years Ago Today
Today is October 18, and 2 years ago today I was sitting in a doctor’s office. We had noticed a rash on Joshua’s stomach and I took him to his pediatrician to get him fixed up. The rash ended up being a symptom of a greater problem, caused by capillaries bursting below his skin because his white blood cell count was so high. His white blood cell count was so high because some 80% of his blood cells were affected by leukemia.
Today’s the anniversary, and today we have alot of hope in this situation as Joshua’s treatment continues to press on and go well. But it does feel strange to be grizzled veterans at this point, having done this stuff for 2 years. On the blog on Monday, I’ll be posting some reflections from year 2, but until then, thanks for reading and praying with us through this.
Wednesday, October 15, 2008
My Sisters
Monday, October 13, 2008
So Soon
Monday, September 29, 2008
Chili's for Dinner

Today, Chili's is donating 100% of its proceeds to St. Jude's Research Hospital. While this is not the hospital that treated Joshua, it is the place where his treatment plan was developed. And by the looks of Joshua these days, it is a fine plan indeed! So, I will be nudging Michael to go out to eat tonight and I hope to see you all there. If you go, make a Chili's in Joshua's honor. Or go here and make one from home. Happy eating!
(HT: Renee)
Thursday, September 25, 2008
Ee Aww
Here are a few more pictures that will make you want to give her a good squeeze the next time you see her.
Sunday, September 21, 2008
Did They Forget Something?
Tuesday, September 16, 2008
The Battle
Tuesday, September 09, 2008
Make a Wish
They let kids meet random Nascar drivers, take them on shopping sprees, buy them computers, attend sporting events and play catch with famous baseball players, buy huge playground equipment for the backyard, and countless other things.
The time has come for Joshua to make his wish.
So we had a meeting last night with Jacilyn, his make a wish consultant. Now here's the thing - there have been families in the past who have tried to work the system a little bit, making their kids wish for a new hummer or to have their mortgage paid off. So we knew that wouldn't work. But to prevent that, each consultant has an interview time with the kid where they draw pictures together and answer questions. My assumption is that they take all this information to craft the experience.
Joshua's interview was pretty revelatory. Here are a few choice tidbits, complete with what we were thinking:
Jacilyn: What's your favorite food?
Joshua: Strawberries
(Wow - pretty healthy start Joshua. Maybe you should have said prime rib.)
Jacilyn: How about junk food? Do you like chips, or candy?
Joshua: Yes. I like Sunchips.
(Hmmm... we've had Sunchips once. At lunch yesterday. Daddy likes Skittles, Joshua.)
Jacilyn: What if you could have anything in the world? What would you want?
Joshua: A Wall-E movie.
(What? Really? How about a life sized robot to cook and clean instead? Or maybe a hummer?)
Jacilyn: If you could meet anybody in the world? Like a football player or a baseball player?
Joshua: Eli. I would meet Eli.
(That's great. Your cousin Eli. That you see 3 times a week.)
In all seriousness, though, it was awesome. Joshua did a great job, and he did just what he was supposed to do - be honest. We will not at this time be revealing what the end result of his wish is; you'll have to wait a while to find out, but we're pretty excited.
